Aug 29 2013 by Sophie McCoid, Ormskirk Advertiser
A BALL has been organised for a little girl who was born with a rare bone marrow disease.
Daisy Walsh suffers from diamond blackfan anaemia (DBA) – a condition affecting only around 700 people in the world. It means she cannot produce the red blood cells needed to carry oxygen round her body.
The two-year-old has to have monthly blood transfusions to keep her alive and the only cure is a bone marrow transplant.
Her parents, from Aughton, have undergone IVF to try and have a baby with the specific tissue match in order for a stem cell transplant to take place.
The couple’s first course earlier this year was unsuccessful but they hope to have another cycle in September and the funds raised from the ball will go towards this.
Helen Hible, one of the ball organisers, said: “We’re just trying to raise as much money and awareness as possible for the three charities, we’d love to raise about £6,000.
“There’s a group of eight of us that have organised the event, between us we have 22 children and many of our children have been taught by Nicci, Daisy’s mum at The Big Picture Nursery.
“Daisy is just like any other child with a big beaming smile and plenty of friends.
“You’d never know the battles the family face every day and we just wanted to do something to help.
“Daisy has her blood transfusions at Alder Hey and they provide an invaluable service so we thought we’d raise money for them, too.
“Sadly, one of the organisers lost her own mother to cancer in October, so in memory of Margaret, we decided to donate to Clatterbridge also.”
Nicci said: “From the bottom of my heart, I thank everyone for their help and support.
“I am overwhelmed by the support of the community in helping us to try and give Daisy the chance of a better, healthy life.
“We live in hope that the next cycle of IVF will be successful and Daisy will one day have a new brother or sister that will be a perfect tissue match donor, for her bone marrow transplant to go ahead.
“Daisy is an amazing little girl who copes with her condition remarkably well. She is my strength and inspiration.
“I love her so much and want to do everything I can to give her a better future.
“It's going to be a fantastic evening, and we are all very much looking forward to it and hope to raise as much money possible for all three amazing causes.”
The Daisy Chain ball is taking place on Saturday night from 7pm at the Ramada Hotel, Southport. Tickets are £35 and are available from Liz on 07815 681160.